This has been a long delayed post but I haven’t forgotten that October is Down Syndrome Awareness month. Being a mother of a child who was born with Down Syndrome, I became a part of the community who wanted to help educate and spread information about the extra 21st chromosome.
When my child was born, it never occurred to me that I will be able to do a blog post such as this. I have never denied what emotions I have been through when our child was diagnosed with Trisomy 21. It turned my world upside down and I never thought I will recover from that. But we went through it all.
It was painful, yes. But my outlook about it has changed as I learn more about my Alphonse.
This month, as the whole world celebrates Down Syndrome Awareness, I knew that I have to take part in spreading information that this disability does not mean our child is any less than typical children. Along with being born with an extra chromosome, a person with Down Syndrome may suffer from other health-related issues. Mine had congenital heart disease called Tetralogy of Fallot and was corrected at age 6 weeks. They will need regular therapies to help them catch up in terms of development and to help them be independent when they grow up. From the very moment they arrived in this world, their battle has begun and they should not suffer further by being ridiculed, maltreated or be the subject of jokes. They deserve to be treated just like how you want to treated.
Our child may have delayed physical and mental development, different facial features and probably is more vulnerable to diseases than others but they are just like any other child or person.
They don’t need sympathy. They need understanding.
They don’t need to be treated special. They need be treated equal.
They don’t need you to be sorry for them. They just need to be loved.
And these are what the whole world should know.