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Alphonse’s Checkup Today

alphonse0121checkup

He is sporting the gift he got from Auntie Kellie (aka joelsgirl in the digital scrapbook community) today. We went to the hospital for his checkup. There were good news and a little bit of not so good news (I don’t want to call them bad news either)

From 2.7kgs at birth, Alphonse now weighs 3.2kgs. He gained weight pretty well during his first 3 weeks and it is a good sign. I am so lucky to have enough breast milk supply for him. I still try and get him to latch at times but unfortunately, it really puts pressure on him so I just have to keep pumping on regular intervals to have enough when we he is hungry. We are doing well together.

Our first stop is with his Pediatrician. Good news, his Newborn Screening results were normal, however, doctor said that we still need to check his thyroid at 4 weeks old to make sure that he doesn’t have Hypothyroidism. A referral to an endocrinologist is necessary so we set another appointment to a new doctor this week.

I am bad at taking photos inside the doctor’s clinic, maybe I should try taking some next time.

During our last visit, he was given his BCG vaccine. His first dose of Hepa B vaccine was administered at birth. He’s going to have his second dose this coming Friday. He’s now ready to take his vitamins too!

We got to meet with his cardiologist later this afternoon. After checking Alphonse’ vitals, he said his oxygen level is good, another good news. He then noted that Alphonse is too small so we still  have to work on gaining weight. We were also advised to check on another cardiac surgeon who has good experience in smaller infants. Things have started to change according to the initial discussion we had.

We had quite a long conversation about the surgery plans. First we discussed about hospitals, the bills, the pros, the cons. As you may have already known, we don’t live in a place where insurance are provided for medical needs such as this so I kept on asking him everything I want to know and every possible thing that could and might happen – every little thing. I am glad that he is such a nice doctor and is very much ready to explain all the details and options to me.

Alphonse will have another 2D Echo appointment on February 7th. The doctor said that they might schedule the surgery between mid to last week of February. Hopefully by then, he will weigh better, we’ll have enough fund and I, enough courage to deal with the situation alone. My husband works in Singapore and we’re still unsure if he’ll be able to make it home for the surgery.

Our fund raising campaign is still ongoing. It is nice to see that we’ve managed to receive almost half of the cost already and we are very thankful to all the people who have reached out to us to help – whether buying my products, purchasing the collab created for Alphonse, direct pledges and our personal campaign. There were digi designers and digi stores who also went  with their own way of gathering funds to help. We sincerely appreciate everything. At present, all we can say is Thank You Very Much! We still have to wait for 2-3 more weeks before his surgery and we’ll take advantage of that time for him to gain weight.

I will keep you all updated about our journey towards having a new life for Alphonse.

comments +

  1. Laura

    January 22nd, 2013 at 12:36 am

    So good to hear good news for the most part. My prayers are with you, Alphonse, and all of your family. God is good, and He will watch over you all in the days ahead.

  2. Heather T.

    January 22nd, 2013 at 6:14 am

    Sure thinking of you and your cutie!! What beautiful eyes he has!

  3. sigrid @ lovinglymama

    January 22nd, 2013 at 6:24 am

    Awww that’s great news sis! Yeah, at least you have more time to nourish him so that he will get bigger and ready for his surgery. God bless you all!

  4. Lady Bug

    January 22nd, 2013 at 8:55 am

    Thank you for taking the time to let everyone know how he is doing. Remember to take care of yourself while you are taking care of Alphonse. I’m happy that you are able to pump your breastmilk. I’m sure the doctors have told you that it is the best thing for your baby. Lots of luck & love to you and your family!

  5. stacey

    January 22nd, 2013 at 11:28 am

    so glad he is gaining weight! Little Alphonse & your family our in my prayers!

  6. JuneS

    January 22nd, 2013 at 1:38 pm

    I am so glad that Alphonse is doing so well. He is lucky to have such a lovely caring mum who will do the best for him. You are both stars!! Keep up the good work. He has gained weight and I am sure he will gain even more before the end of February. Thoughts and prayers with you and your family. xx

  7. Arlene

    January 22nd, 2013 at 1:54 pm

    You are a warrior woman Mye. You have to do so much all on your own, with your hubby so far away all the time. Taking care of your twin girls and little Alphonse… and all the stress over his heart condition. I’m praying for you and your family. Stay strong.

  8. annie

    January 22nd, 2013 at 3:01 pm

    I was thinking and praying for you as my 4 year son went through his second surgery 2 weeks ago. Sometimes it helps to know that there are other mothers who have been through something similar. I will be praying for extra strength for you and little Alphonse. God has got great plans for both of you, even if it doesn’t seem like it.

  9. Marilyn

    January 22nd, 2013 at 3:04 pm

    Thanks for the update. I think of you all often and wonder how things are progressing for little Alphonse.

  10. Andi

    January 22nd, 2013 at 3:59 pm

    Praying for you and your sweet boy. He’s so precious, I love his new little outfit. Praying too that your hubby will be there for the surgery. I can’t imagine going through it alone.

  11. Amphitrite

    January 22nd, 2013 at 5:24 pm

    It’s good that he’s gaining weight. You’re a strong woman and I admire you for that. Alphonse is really lucky to have you as a mother. Take care.

  12. Michi

    January 22nd, 2013 at 5:38 pm

    Thank you Mye for the update on Alphonse. It is good that he is gaining weight and screening results are normal. Keeping you in prayers. The collab along with the extra parts are all so beautiful. If people do not have, I sure hope they will purchase soon.

  13. Hazel Steadham

    January 22nd, 2013 at 6:36 pm

    So glad to hear that news Mye. Hang in there. Thinking of you and hoping that everything will turn out for the best. And, it sounds like Alphonse may be a bit of a fighter as well as his mom.

  14. kel

    January 22nd, 2013 at 8:58 pm

    So glad to hear he’s putting on weight and you’ve got a bit more time before surgery. I really hope your DH can make it back home for the surgery. Love and hugs xx kel

  15. Nicole

    January 22nd, 2013 at 10:36 pm

    We are so happy to help in any way we can, Mye. I thinking of you both every day and I’m praying all the money you need comes in! I’m thrilled to hear that you are at the halfway mark.

  16. neva | manilamommy

    January 23rd, 2013 at 12:09 am

    hi mye! i’m so happy that alphonse is doing well and is gaining weight. my son has a team of doctors too so if you need referrals just email me. please know that your online family are all rooting for you and your little fighter. god bless!

  17. Penny

    January 23rd, 2013 at 8:18 pm

    Thanks for updating us on Alphonse, the appointments and the fundraising campaign. Glad to hear his gaining weight. Hopefully your husband will make it back home for the surgery. (((hugs)))

  18. Felis

    January 24th, 2013 at 12:03 am

    This is great, Mye! I hope to find best specialist! Do some of foundation answer you or to search for other if they don’t help? Take care for you and your little treasures! We are with you!

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