It was early yesterday morning when we went back to the hospital. Another test was requested to be done for Alphonse. This time, it’s his thyroid. Although his Newborn screening result is good, they wanted to make sure that at 4 weeks of life, there won’t be any problem or if there is, it can be worked up early.
We went to his pediatrician first to have his second dose of Hepatitis B vaccine. Good news is, after 4 days since we last saw the doctor, he gained another 200 grams so he now weighs 3.4 kgs. This is the first time I’ve heard him cry so loud, and although it got me nervous, part of me is happy to hear him crying. It’s probably because I heard something from him – from my precious son.
We headed to ambulatory department and there, they got blood samples for testing. The procedure was easy but Alphonse was a little irritated while the lab tech was extracting blood. He cried a lot there too and lucky me, he’s so easy to pacify.
The result was out after 4 hours of waiting. They took extra hour to complete the report since they said they needed a “re-run”. I already had a hint that something is wrong so I immediately went to meet with his endocrinologist after I got a hold of the papers. I wasn’t wrong.
The results of his TSH is very high. The doctor explained everything to me and from her diagnosis, Alphonse has sub-clinical hypothyroidism and will need to start taking medications soon if his pediatrician and cardiologist will give clearance that it will not compromise his heart condition. One bad news of the day – he’ll be on thyroid meds for the rest of his life. The only consolation is, at least there’s medication for the illness.
I know this isn’t a very serious case but as a mother, I can’t help but grieve over another thing that I know my son will have to face forever. Will it end here? Will there be more? We can’t tell right now. We will have more tests to undergo in the next couple of days.
Our Indiegogo fund raising campaign is now down to its final stretch. We are appealing to your kind hearts, one more time to please share the link to others. Thank you so much for your thoughts, kindness and your generosity. Our family appreciates it a lot!
Hang in there Mye…he is a blessing.
I had hyperthyroidism and it caused several miscarriages. After it now has been removed, I am on medication for the rest of my life with hypothyroidism (no thyroid to produce now). Meds the rest of his life is not really bad, it will allow him a more normal life – prayers for you – all is well and God is watching over you!
Hi Mye – I just wanted to let you know that i had thryoid issues and had to have a complete thyroidectomy in 2004. I am happy to say that I had a beautiful healthy baby girl in 2005 and have had a normal life on meds. It’s not too bad, at least in the States, once you reach an acceptable level you only have to get blood drawn once or twice a year. Hang in there – it’s something that can be managed.
hi mye! noah is on meds too for his thyroid. it’s a blessing that we have tests now that determine what our kids need right away instead of the condition worsening. i know it’s easier said than done but take things one day at a time. enjoy alphonse and the blessings he has brought upon you and your family. he has made it possible for your friends, family and complete strangers online (just like me!) to rally around your family and show you how much you are loved and supported. we are all rooting for alphonse!
Prayers to you all! I am hypo as well. It just becomes part or your routine. I know it is hard to hear for a little one, but it will be okay. Hugs to you all!
Thinking nothihg but good thoughts for you and little Alphonse. Hang in there.
I’m so sorry you received more bad news, but thank goodness that it is something that can be treated with medication. Continued prayers for your son and for you and your family. Hugs to you Mye.
Dear Mye, don’t be sad ! Now is need to be positive, your son and also your daughters too, need to feel you calm! I guess it’s very difficult to you, but don’t be sad, everything will be alright! We will praying for your family! Also medicine developing fast, today is necessary he to be on thyroid meds, but after 10-15 years is possible to find better and easy way. Hugs to all family!
Hi Mye. I just want to stop by to let you know that you are very much in my thoughts and prayers. Enjoy you beautiful little prince. He is gorgeous. Thanks for sharing photos on your other blog about his birth. Know that you are not doing this alone. Many people around the world are here supporting you and are wanting to give as much as they can give to help you out. They are also praying for you and sending good thoughts your way. I am a fairly new scrapper and have enjoyed using some of your products. Thank you for that! I appreciate the hard work, time and talent that goes into everything you do. God bless you, dear Mye and family. Sending you many warm hugs, Heather from Canada.ps I live with multiple heart/lung problems but thanks to medication I am doing ok. It is so amazing what they can do in this day and age!